I am super excited to hit the ground running with this project.
First, let me tell you a little bit about whats going on. Angelman syndrome is a neuro-genetic disorder. It is very uncommon and is often confused with autism. It occurs in around one in 15,000 live births. This disorder can not be diagnosed until the child is around a year old. It causes development issues related to walking and speech. People diagnosed with angelman usually have seizures and a love for water. Now, lets relate this to what I am doing. At the YMCA I met the beautiful Moore family. Amanda and her husband Adam are parents to two beautiful twins. Jackson; however, has been diagnosed with Angelman syndrome, where as his brother Baden has not. Jackson's smile is contagious and seeing him brightens your day, no matter how bad it has been Jackson always makes you feel better. This has grown to be one of my favorite parts about coming to work. The goal: I am partnering with Amanda, who is on the National Angelman Syndrome foundation board, to help raise awareness and money for this disorder. I am assisting her in projects she already has growing and helping to contribute new ideas as well. Two of my classmates, Hailee Holberton and Louis Holbrook, will be joining in me as I help Amanda. I am super excited to begin this journey!
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March 2018
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